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Child health Mental health

Learning disabilities

Last revised in April 2025

Lower intellectual ability and social functioning < age 18

Learning disabilities: Summary

  • The National Institute for Health and Care Excellence advises that a learning disability is defined by three core criteria: lower intellectual ability (usually an IQ of less than 70), significant impairment of social or adaptive functioning, and onset in childhood.
  • The UK Department of Health and Social Care (DHSC) defines a learning disability as 'a significantly reduced ability to understand new or complex information, to learn new skills (impaired intelligence), with a reduced ability to cope independently (impaired social functioning), which started before adulthood'.
    •  The term 'intellectual disability' is becoming increasingly used internationally.
  • The severity of a learning disability may be classified as mild, moderate, severe, or profound, depending on the person's IQ range, language and practical skills, and ability to self-care.
  • A person is more likely to have a learning disability if there is a chromosomal or genetic anomaly; a congenital malformation; prenatal exposure; birth complication; childhood illness, brain injury or trauma, or neglect; or a neurodevelopmental disorder.
  • A person with a learning disability may have associated conditions such as behaviour that challenges, physical health problems, mental health problems, and experience social stigma and discrimination.
  • People with a learning disability have a shorter life expectancy than the general population.
  • Assessment of a person with a suspected learning disability should take into account their communication needs, developmental stage, level of understanding, capacity to make decisions, and severity of disability, and include:
    • Asking about behavioural difficulties, daily living and routine; family and social history; developmental and childhood health; educational and occupational history; physical health problems; cognitive, emotional, and mental health problems; behaviour that challenges and risk factors; current and previous interventions and medication.
    • A physical examination to include general appearance, eye contact, use of vocabulary, social interaction, and behaviour.
  • Management of a person with a suspected learning disability should include:
    • Arranging referral to the local learning disability support team for confirmation of the diagnosis and management.
    • Considering referral to a clinical psychologist or specialist mental health services if clinically indicated.
    • Considering referral to a clinical genetics specialist if a chromosomal or genetic anomaly is suspected.
    • Considering referral to the local child or adult safeguarding team if there are concerns about possible exploitation, abuse, or neglect by others, or if the person is in contact with the criminal justice system.
  • Management of a person with a confirmed learning disability should include:
    • Liaising with the local multidisciplinary learning disability support team for advice about behaviour that challenges and/or mental health problems that cannot be managed in primary care. 
    • Offering all adults and young people aged over 14 years an annual health check in primary care if needed.
    • Offering advice about sources of information and support to the person, family members and/or carers.
    • Discussing management options to support physical health problems, behaviour that challenges, and/or mental health problems.
    • Reviewing and monitoring any drug treatments, depending on clinical judgement and any shared care arrangement.
    • Offering to discuss end of life care planning.

Have I got the right topic?

From age 1 month onwards.

This CKS topic is largely based on the National Institute for Health and Care Excellence (NICE) guidelines Challenging behaviour and learning disabilities: prevention and interventions for people with learning disabilities whose behaviour challenges [NICE, 2015], Mental health problems in people with learning disabilities: prevention, assessment and management [NICE, 2016a], Care and support of people growing older with learning disabilities [NICE, 2018a], and Decision-making and mental capacity [NICE, 2018b]. 

This CKS topic covers the assessment and management of a suspected or confirmed learning disability in children and adults.

This CKS topic does not cover detailed specialist management and social support of people with a learning disability, or detail about Deprivation of Liberty Safeguards (DOLS).

There are separate CKS topics on Attention deficit hyperactivity disorder, Autism in children, Autism in adults, Bipolar disorder, Child maltreatment - recognition and management, Conduct disorders in children and young people, Dementia, Depression, Depression in children, Epilepsy, Generalized anxiety disorder, Obsessive-compulsive disorder, Palliative care - general issues, and Psychosis and schizophrenia.

The target audience for this CKS topic is healthcare professionals working within the NHS in the UK, and providing first contact or primary healthcare.

How up-to-date is this topic?

Changes

April 2025 — minor update. QOF indicators removed in line with NHS England's 2025 Quality and Outcomes Framework.

Previous changes

March to April 2023 — reviewed. A literature search was conducted in March 2023 to identify evidence-based guidelines, UK policy, systematic reviews, and key randomised controlled trials published since the last revision of the topic. The topic has been updated to reflect current evidence in the literature. No major changes to the recommendations have been made.

April 2022 — minor update. New wording added and 'statement of educational needs' has been replaced by 'education, health and care plan'.

August 2020 — minor update. Text reflecting the new NICE quality standard QS194 has been added.

October 2018 — new topic. The evidence base has been reviewed in detail, and recommendations are clearly justified and transparently linked to the supporting evidence.

Update

New evidence

Evidence-based guidelines

No new evidence-based guidelines 1 March 2023.

HTAs (Health Technology Assessments)

No new HTAs since 1 March 2023.

Economic Appraisals

No new economic appraisals relevant to England since 1 March 2023.

Systematic reviews and meta-analyses

No new systematic reviews or meta-analysis which reach the CKS threshold for inclusion since 1 March 2023.

Primary evidence

No new primary evidence which reaches the CKS threshold for inclusion published since 1 March 2023.

New policies

No new national policies or guidelines since 1 March 2023.

New safety alerts

No new safety alerts since 1 March 2023.

Changes in product availability

No changes in product availability since 1 March 2023.

Goals and outcome measures

Goals

To support primary healthcare professionals to:

  • Refer a person for specialist confirmation of a diagnosis if a learning disability is suspected.
  • Provide support and advice for a person with a confirmed learning disability and to their family members/carers.
  • Ensure the person has an annual health check in either primary or secondary care, and is provided with a health action plan.
  • Provide support and management for behaviour that challenges and/or a mental health problem, aligned with specialist advice where needed.
  • Prescribe antipsychotic drug treatment, if needed, as part of a shared care agreement with the person's specialist team.

Outcome measures

No outcome measures were found during the review of this topic.

Audit criteria

No audit criteria were found during the review of this topic.

QOF indicators

No QOF indicators were found during the review of this topic.

QIPP - Options for local implementation

No QIPP indicators were found during the review of this topic.

NICE quality standards

NICE quality standards relating to people with a learning disability and behaviour that challenges which may be relevant to this CKS topic include:

  • Quality statement 2. People with a learning disability have an annual health check from their GP.
  • Quality statement 3.  People with a learning disability and behaviour that challenges have an initial assessment to identify possible triggers, environmental factors and function of the behaviour.
  • Quality statement 4. People with a learning disability and behaviour that challenges have a named lead practitioner.
  • Quality statement 5. Families and carers of a person with a learning disability and behaviour that challenges are involved in developing the person's care and support plan, which includes how to prevent or respond to a crisis.
  • Quality statement 6. Parents or carers of children aged under 12 years with a learning disability and behaviour that challenges are offered a parent-training programme.
  • Quality statement 7. People with a learning disability and behaviour that challenges take part in personalised daily activities.
  • Quality statement 8. People with a learning disability and behaviour that challenges have access to specialist behavioural support in the community.
  • Quality statement 11. People with a learning disability and behaviour that challenges only receive antipsychotic medication as part of treatment that includes psychosocial interventions.
  • Quality statement 12. People with a learning disability and behaviour that challenges have a multidisciplinary review of their antipsychotic medication 12 weeks after starting treatment and then at least every 6 months.

[NICE, 2019]

NICE quality standards relating to people with a learning disability and mental health problems which may be relevant to this CKS topic include:

  • Quality statement 1. Young people and adults with a learning disability have an annual health check that includes a review of mental health problems.
  • Quality statement 2. People with a learning disability who need a mental health assessment are referred to a professional with expertise in mental health problems in people with learning disabilities.
  • Quality statement 3. People with a learning disability and a serious mental illness have a key worker to co-ordinate their care.
  • Quality statement 4. People with a learning disability and mental health problems who are receiving psychological interventions have them tailored to their preferences, level of understanding, and strengths and needs.
  • Quality statement 5. People with a learning disability who are taking antipsychotic drugs that are not reduced or stopped have annual documentation on reasons for continuing this prescription.

[NICE, 2017]

NICE quality standards relating to people with a learning disability and decision making and mental capacity which may be relevant to this CKS topic include:

  • Quality statement 1. People aged 16 and over who may lack capacity to make decisions are supported with decision making in a way that reflects their individual circumstances and meets their particular needs.
  • Quality statement 2. People aged 16 and over at risk of losing capacity to make decisions, and those with fluctuating capacity, are given the opportunity to discuss advance care planning at each health and social care review.
  • Quality statement 3. People aged 16 and over who are assessed as lacking capacity to make a particular decision at the time that decision needs to be made, have a clear record of the reasons why they lack capacity and the practicable steps taken to support them.
  • Quality statement 4. People aged 16 and over who lack capacity to make a particular decision at the time that decision needs to be made have their wishes, feelings, values, and beliefs accounted for in best interests decisions.

[NICE, 2020]

Background information

What is it?

  • The National Institute for Health and Care Excellence (NICE) advises that a learning disability is defined by three core criteria [NICE, 2015]:
    • Lower intellectual ability (usually an IQ of less than 70).
    • Significant impairment of social or adaptive functioning.
    • Onset in childhood.
    • Note: the term 'intellectual disability' is becoming increasingly used internationally.
  • The UK Department of Health and Social Care (DHSC) defines a learning disability as [DHSC, 2001]:
    • 'A significantly reduced ability to understand new or complex information, to learn new skills (impaired intelligence), with a reduced ability to cope independently (impaired social functioning), which started before adulthood'.
  • A learning disability differs from a 'learning difficulty', which is [PHE, 2023]:
    • 'A reduced intellectual ability for a specific form of learning and includes conditions such as dyslexia (reading), dyspraxia (affecting physical co-ordination) and attention deficit hyperactivity disorder (ADHD).  A person with a learning disability may also have one or more learning difficulties'.
  • The International Classification of Diseases 11th Revision (ICD-11) classifies the severity of learning disabilities as [WHO, 2022]:
    • Mild — approximate IQ range of 50 to 69. Likely to result in some difficulties in the acquisition and comprehension of complex language concepts and academic skills. Most people can manage basic self-care, domestic, and practical activities, and can live and work relatively independently, but may require appropriate support.
    • Moderate — approximate IQ range of 35 to 49. Likely to have basic language and academic skills, but some will manage basic self-care, domestic, and practical activities. Most will need considerable and consistent support to live and work independently.
    • Severe — approximate IQ range of 20 to 34. Have very limited language and academic skills and may also have motor impairments. Typically need daily support in a supervised environment for adequate care, but may acquire basic self-care skills with intensive training.
    • Profound — IQ under 20. Results in very limited communication skills and may have basic concrete skills. May have motor and sensory impairments, and typically need daily support in a supervised environment for adequate care.

How common is it?

  • Public Health England (PHE) estimates there are about 1.3 million people with a learning disability in England, including over 950,000 adults aged 18 years or over. The number of people with learning disabilities recorded in health and welfare systems is much lower [PHE, 2023].
  • Data analysis from 55.7% of patients registered with a GP practice in England in 2021–2022 showed that 0.5% of patients in primary care were recorded as having a learning disability by their GP [NHS Digital, 2022].
  • In 2018, 67,765 children in England had an education, health and care plan and were identified as having a primary special educational need associated with learning disabilities. Of these [PHE, 2020]:
    • 28,241 had moderate learning difficulties.
    • 29,492 had severe learning difficulties.
    • 10,032 had profound multiple learning difficulties.
    • The majority of children with moderate, severe, and profound multiple learning difficulties were boys.
    • 26% were being educated in a mainstream school.

What are the risk factors?

  • A person is more likely to have a learning disability if there is a risk factor which affects the development of the brain before birth, during birth, or in early childhood [PHE, 2023]:
    • Some chromosomal and genetic anomalies — such as Down's syndrome, Turner syndrome, Williams syndrome, Rett's syndrome, Fragile X syndrome.
    • Some non-genetic congenital malformations — such as some forms of spina bifida, hydrocephalus, microcephaly.
    • Prenatal exposures — including alcohol, sodium valproate, congenital rubella infection, Zika virus infection.
    • Birth complications resulting in hypoxic brain injury or cerebral palsy.
    • A very premature birth (usually less than 33 weeks' gestation).
    • Childhood illness — such as meningitis, encephalitis, measles, epilepsy. See the CKS topics on Meningitis - bacterial meningitis and meningococcal disease, Measles, and Epilepsy for more information.
    • Childhood brain injury or trauma including non-accidental injury. See the CKS topic on Child maltreatment - recognition and management for more information.
    • Childhood neglect and/or lack of stimulation in early life.
    • Neurodevelopmental disorders such as autism and attention deficit hyperactivity disorder (ADHD). See the CKS topics on Autism in children, Autism in adults, and Attention deficit hyperactivity disorder for more information.
  • A person with a learning disability is more at risk of behaviour that challenges if there are [NICE, 2015]:
    • Personal factors
      • Typical age (incidence peaks in teenagers and people in their early 20s).
      • A severe learning disability.
      • Autism. See the CKS topics on Autism in children and Autism in adults for more information.
      • Mental health problems including dementia. See the CKS topic on Dementia for more information.
      • Communication difficulties (expressive and receptive).
      • Sensory impairments (visual impairment may lead to increased self-injury and stereotypy).
      • Sensory processing difficulties.
      • Physical health problems.
    • Environmental factors
      • Care environments with limited opportunity for social interaction and meaningful activity, low engagement with staff, lack of choice, or excessive sensory stimulation such as noise, heat, light, and smell.
      • Care environments which are crowded, unresponsive, or unpredictable; characterized by abuse or neglect; or physical health needs such as pain are unmet. See the CKS topic on Child maltreatment - recognition and management for more information.
      • Developmentally inappropriate care environments (for example, an educational curriculum that makes too many demands on a child or young person).
      • Care environments where disrespectful social relationships and poor communication are typical, or where staff do not have the capacity or resources to respond to people's needs.
      • Changes to the person's environment (for example significant staff changes or moving to a new care setting).

Which conditions may be associated?

A person with a learning disability may have associated conditions, but these may be under-diagnosed due to difficulties in interpreting symptoms, atypical presentations, difficulties in communication, and difficulties accessing healthcare services.

What is the prognosis?

People with a learning disability have a shorter life expectancy than the general population.

  • A learning disability is a lifelong condition which cannot be cured [PHE, 2023].
  • The Learning from Lives and Deaths - people with a learning disability and autistic people (LeDeR) 2021 publication found [KCL, 2021]:
    • 6 out of 10 people living with a learning disability died before they were 65 years of age.
    • The median age of death was 61 years, which is an increase by one year compared with deaths notified in 2018 and 2019. On average, men with a learning disability die 22 years earlier than the population average, and women die 26 years earlier than the population average.
    • COVID-19, congenital malformations and chromosomal abnormalities, and cancer were the leading causes of death.
    • People of Black, Black British, Caribbean or African, mixed ethnic group, and Asian or Asian British ethnicity died at a younger age compared with people of white ethnicity.
    • 49% of deaths were rated as 'avoidable', compared with 22% of death in the general population.
  • The Confidential Enquiry into premature deaths of people with learning disabilities (CIPOLD) reviewed the deaths of 247 people with learning disabilities in 2010–2012 and found [CIPOLD, 2013]:
    • The most common underlying causes of death were cardiac and circulatory disorders and cancer.
    • The final event leading to death was most commonly a respiratory infection.
    • 43% of the deaths were unexpected.

Diagnosis of learning disabilities

How should I assess a person with a learning disability?

Most people with a learning disability in primary care will have a diagnosis following a specialist neurodevelopmental assessment. Rarely, children or adults may present in primary care with a suspected learning disability which may be associated with additional risk factors. Assess the person's needs and capacity to make specific decisions throughout their assessment.

  • Take a history, taking into account the person's communication needs, developmental stage, level of understanding, and severity of learning disability. Wherever possible and appropriate, communicate with the person directly:
    • Use plain English, short sentences, and avoid medical jargon and acronyms.
    • Check whether they have a hospital passport, which may specify their preferred method of communication with others, such as use of communication aids, an advocate, or someone familiar with the person.
    • Make adjustments to accommodate sensory impairments (including vision and hearing).
    • Consider use of visual aids, objects, practical demonstractions, or gestures to explain concepts.
    • Give the person time to process information before they respond.
    • Use different methods and formats for communication (written, signing, visual, verbal, where possible), depending on the person's preferences, such as Makaton (signs and speech), Talking Mats (symbols), Beyond Words (wordless picture books), or Widgit (symbol-based images). If using written text, use larger, easy to read text where possible.
    • Regularly check the person's understanding by asking open questions.
  • Ask the person, their family members and/or carers about:
    • Past or current behaviour and any difficulties with daily living and routine, such as understanding new or complex information, learning new skills, budgeting, planning, and time management.
    • Family and social history including relationships with family members, carers, staff (such as care workers and teachers); any history of attachment difficulties; any history of trauma, neglect, or abuse; need for support with activities of daily living and self-care; smoking, alcohol, and recreational drug use.
    • Developmental history (birth, pregnancy, developmental milestones).
    • Any childhood health conditions.
    • Educational history (types of schools; level of help and support required with reading, writing, or simple numeracy; any education, health and care plan; any qualifications achieved).
    • Occupational history (paid and voluntary).
    • Any physical health problems including difficulties with co-ordination and mobility, bladder or bowel continence; language, communication and interaction; sensory impairments including vision and hearing; sensory processing difficulties.
    • Any cognitive, emotional, psychological, mental health problems, or behaviour that challenges and associated risk factors; problems with concentration and attention; any risk of exploitation, abuse, or neglect by others.
    • Family/carer interpretations of the person’s difficulties.
    • Previous cognitive assessments; help needed interpreting social cues.
    • Current and previous medication and interventions, and response.
    • Input from other professionals (child and adult).
  • Examine the person, including:
    • General appearance.
    • Eye contact.
    • Use of vocabulary.
    • Social interaction.
    • Behaviour.

Assessment of capacity

  • People aged 16 years and older should be supported to make decisions for themselves when they have the mental capacity to do so, and should remain at the centre of the decision-making process where they lack the mental capacity to make specific decisions. The Mental Capacity Act (2005) is a legal framework to allow for the making of decisions on behalf of adults who lack the capacity to make a decision (or decisions) for themselves.
    • A person must be assumed to have capacity to take part in decision-making unless it is established that they lack capacity.
    • A person is not to be treated as unable to make a decision unless all practicable steps to help them to do so have been taken without success.
    • A person is not to be treated as unable to make a decision merely because they make an unwise decision.
    • An act done, or decision made, under this Act for or on behalf of a person who lacks capacity must be done, or made, in their best interests.
    • Before the act is done, or the decision is made, regard must be had to whether the purpose for which it is needed can be as effectively achieved in a way that is less restrictive of the person's rights and freedom of action.
  • An assessment of the person's capacity to make decisions should be personalised and should take into account factors that can impact on a person's ability to make a decision, including:
    • Physical and mental health.
    • Communication needs.
    • Previous experience (or lack thereof) in making decisions.
    • The involvement of others and the possibility of undue influence, duress, or coercion regarding the decision.
    • Situational, social, and relational factors.
    • Cultural, ethnic, and religious factors.
    • Cognitive (including the person's awareness of their ability to make decisions), emotional and behavioural factors, or those related to symptoms.
    • The effects of prescribed drugs or other substances.
  • When giving information to the person to help them make a decision, it should be:
    • Accessible, relevant, and tailored to their specific needs.
    • Sufficient to allow the person to make an informed choice about the specific decision in question.
    • Supported by tools such as visual materials and aids, communication aids and hearing aids, as appropriate.
  • Make a written record of the decision-making process, which is proportionate to the decision being made. Share the record with the person and, with their consent, others such as a carer or advocate. Include:
    • What the person is being asked to decide.
    • How the person wishes to be supported to make the decision.
    • Steps taken to help the person make the decision.
    • Other people involved in supporting the decision.
    • Information given to the person.
    • Whether on the balance of probabilities a person lacks capacity to make a decision.
    • Key considerations for the person in making the decision.
    • The person's expressed preference and the decision reached.
    • Needs identified as a result of the decision.
    • Any further actions arising from the decision.
    • Any actions not applied and the reasons why not.

[BPS, 2015; NICE, 2018a; NICE, 2018b] 

Basis for recommendation

The recommendations on assessment are largely based on the National Institute for Health and Care Excellence (NICE) guidelines Challenging behaviour and learning disabilities: prevention and interventions for people with learning disabilities whose behaviour challenges [NICE, 2015], Mental health problems in people with learning disabilities: prevention, assessment and management [NICE, 2016a], and Decision-making and mental capacity [NICE, 2018b]; the Public Health England (PHE) guidance Learning Disability - applying all our health [PHE, 2023], the NHS England (NHSE) publication Improving identification of people with a learning disability: guidance for general practice [NHS England, 2019], the British Psychological Society publication Guidance on the assessment and diagnosis of intellectual disabilities in adulthood [BPS, 2015], and expert opinion in a review article on children with a possible learning disability or difficulty [Rey-Casserly, 2019]. They are also pragmatic, based on what CKS considers to be good medical practice.

  • The recommendations on communication issues to take into consideration are largely based on the PHE guidance [PHE, 2023].
  • The recommendations on aspects of physical examination to take into consideration are largely based on the British Psychological Society guidance [BPS, 2015].

Management

Scenario: Suspected learning disability

From age 1 month onwards.

How should I manage a person with a suspected learning disability?

If a person has a suspected learning disability following initial assessment, assess the person's needs and capacity to make specific decisions about their care at all stages. Ensure the person's communication needs are taken into account and reviewed regularly.

  • Arrange referral to the local learning disability support team for confirmation of the diagnosis and management.
    • This may include specialist neurodevelopmental assessment, support, and intervention services, delivered by psychologists, psychiatrists, behavioural analysts, nurses, social care staff, speech and language therapists, educational staff, occupational therapists, physiotherapists, physicians, paediatricians, and pharmacists, depending on local service provision.
  • Consider referral to a clinical psychologist if the person requires assessment for issues such as accessing benefits, determining mental capacity, deprivation of liberty safeguards, parenting assessments, determining fitness to plead within the criminal justice system, and immigration/deportation decisions.
  • Consider referral to specialist mental health services if there is associated behaviour that challenges and/or a mental health problem that cannot be managed in primary care.
  • Consider referral to a clinical genetics specialist if a chromosomal or genetic anomaly is suspected.
    • If teratogenic exposure is suspected or confirmed, referral to a clinical geneticist is also advised to rule out an underlying genetic cause that may contribute to or explain the condition.
  • Consider referral to the local child or adult safeguarding team if there are concerns about possible exploitation, abuse, or neglect by others, or if the person is in contact with the criminal justice system.

Basis for recommendation

The recommendations for management of a person with a suspected learning disability are based on the National Institute for Health and Care Excellence (NICE) guidelines Challenging behaviour and learning disabilities: prevention and interventions for people with learning disabilities whose behaviour challenges [NICE, 2015] and Mental health problems in people with learning disabilities: prevention, assessment and management [NICE, 2016a]; the Public Health England (PHE) guidance Learning Disability - applying all our health [PHE, 2023], and the British Psychological Society publication Guidance on the assessment and diagnosis of intellectual disabilities in adulthood [BPS, 2015].

Arranging referral to the local learning disability support team
  • This recommendation is extrapolated from the NICE guideline on challenging behaviour [NICE, 2015] and the NICE guideline on mental health problems [NICE, 2016a].
Arranging referral to a clinical psychologist
  • This recommendation is based on the British Psychological Society guidance [BPS, 2015].
Arranging referral to specialist mental health services
  • This recommendation is based on the NICE guideline on challenging behaviour [NICE, 2015] and the NICE guideline on mental health problems [NICE, 2016a].
Arranging referral to a clinical genetics specialist
  • This recommendation is largely based on the PHE guidance [PHE, 2023]. The recommendation to refer if a teratogenic exposure has been reported is pragmatic, based on what CKS considers to be good clinical practice.
Arranging referral to the local safeguarding team
  • This recommendation is based on the NICE guideline on challenging behaviour [NICE, 2015].

Scenario: Confirmed learning disability

From age 1 month onwards.

How should I manage a person with a confirmed learning disability?

If a person has a confirmed learning disability following specialist assessment, encourage and support family members and/or carers to be involved in care and management decisions where appropriate, depending on the person's wishes and capacity to make decisions. Ensure the person's communication needs are taken into account and reviewed regularly.

  • Liaise with the local multidisciplinary learning disability support team for advice in the following areas, if needed:
    • Assessment and care co-ordination.
    • Behavioural assessment and treatment.
    • Care management and community nursing.
    • Epilepsy care. See the CKS topic on Epilepsy for more information.
    • Independent supported living.
    • Mental health, psychiatry, and psychology.
    • Specialist occupational therapy and creative therapies.
    • Speech and language therapy.
    • Support for children and adults with complex health needs.
    • Support for parents, families, and carers.
    • Transition into adult care. See the National Institute for Health and Care Excellence (NICE) guideline Transition from children’s to adults’ services for young people using health or social care services for more information.
  • Offer all adults and young people aged over 14 years with a learning disability an annual health check in primary care if this has not been arranged by their specialist team.
  • Ensure all aspects of the person's health, care, and wellbeing are reviewed during the annual health check.
  • Provide advice about sources of information and support to the person, family members and/or carers, such as:
  • Provide advice to family members and/or carers about available support, such as:
    • Health, social care, and support services including carer health checks and influenza immunization.
    • How to access a carer assessment, day opportunities, respite care, and other support, recognizing the potential impact of living with or caring for a person with a learning disability.
    • Family advocacy and family support groups.
    • Skills training and emotional support.
  • Offer to discuss end of life care planning, including:
    • The person's needs and wishes, including faith and culture, nutrition, hydration, and pain management options.
    • The person's preferred location of care and death, which may involve training and support of family members and carers at each stage of the end of life care process.
    • Key members of the person's support network who have the knowledge, confidence, and understanding to communicate with the person about their illness, symptoms and management options, and their preferences for resuscitation.
  • If there is any uncertainty about any aspect of the person's care and management, seek specialist advice from the person's adult or child psychiatrist, neurodevelopmental paediatrician, or other member of the multidisciplinary learning disability support team.

Basis for recommendation

The recommendations for management of a person with a confirmed learning disability are based on the National Institute for Health and Care Excellence (NICE) guidelines Challenging behaviour and learning disabilities: prevention and interventions for people with learning disabilities whose behaviour challenges [NICE, 2015], Mental health problems in people with learning disabilities: prevention, assessment and management [NICE, 2016a], Decision-making and mental capacity [NICE, 2018b], Care and support of people growing older with learning disabilities [NICE, 2018a], Transition from children's to adults' services for young people using health or social care services [NICE, 2016c], and Disabled children and young people up to 25 with severe complex needs: integrated service delivery and organisation across health, social care and education [NICE, 2023]; the Public Health England (PHE) guidance Learning Disability - applying all our health [PHE, 2023] and Annual health checks and people with learning disabilities [PHE, 2016], and the NHS England (NHSE) publication A summary and overview of the learning disability annual health check electronic clinical template (2017) [NHS England, 2017].

Liaising with the learning disability support team
  • This recommendation is based on the NICE guidelines on challenging behaviour [NICE, 2015], mental health problems [NICE, 2016a], support of older people [NICE, 2018a], and transition from child to adult services [NICE, 2016c], together with the PHE guidance on learning disability [PHE, 2023].
    • People with a learning disability are more likely to have communication difficulties and limited understanding of health information (health literacy) to help them manage their own health and care [PHE, 2023].
Offering an annual health check in primary care
  • These recommendations are based on the NICE guidelines on challenging behaviour [NICE, 2015], mental health problems  [NICE, 2016a], support of older people [NICE, 2018a], and on severe complex needs [NICE, 2023], the PHE guidance on annual health checks [PHE, 2016] and learning disability [PHE, 2023], the NHSE summary of the annual health check [NHS England, 2017], and resources on the National Development Team for Inclusion (NDTI) website.
    • The recommendation to encourage continuity of care is based on the NICE guideline on support for older people, which notes this allows building of good relationships and understanding of the person's usual behaviour and communication needs, and allows provision of individualized health advice.
    • The recommendation to review any support needs and reasonable adjustments is based on the NHSE publication and the NICE guideline on severe complex needs.
    • The PHE guidance on annual health checks also highlights the importance of supporting people with a learning disability to use their health services optimally. It notes people may not know when they are unwell or need to see a healthcare professional, and may not be able to communicate their symptoms or needs. In addition, family members and/or carers may not attribute symptoms to physical or mental illness. An annual health check enables early identification, treatment, and prevention of previously unrecognized, new, or unmet health needs including potentially serious or life-threatening conditions [PHE, 2016].
    • The NDTI website promotes annual health checks as a mechanism to improve health, reduce inequality, and reduce premature mortality for people with a learning disability.
    • The PHE guidance on learning disability highlights the importance of assessing a person's physical and mental health and the wider determinants of health and wellbeing. It also supports the promotion of healthy lifestyles and health screening programmes [PHE, 2023].
    • The PHE guidance on annual health checks notes that behaviour that challenges may result from physical health problems, and identifying and treating physical health problems may also reduce and stop behaviour that challenges [PHE, 2016].
    • The recommendation to ask about and act on any safeguarding concerns is extrapolated from the NICE guidance on challenging behaviour.
    • The information about additional health assessments for people with specific syndromes is based on the NICE guidance on mental health problems and the NHSE summary of the annual health check.
    • The recommendation to offer to discuss future planning and care needs is based on the NICE guideline for support of older people.
Providing advice on sources of information and support
  • These recommendations are based on the NICE guidelines on challenging behaviour [NICE, 2015] and mental health problems [NICE, 2016a], and the PHE guidance on learning disability [PHE, 2023].
Providing advice on support for family members and/or carers
  • These recommendations are extrapolated from the NICE guidelines on challenging behaviour [NICE, 2015], mental health problems [NICE, 2016a], and support of older people [NICE, 2018a], and are also based on the PHE guidance on learning disability [PHE, 2023] and the NHSE summary of the annual health check [NHS England, 2017].
Offering end of life care planning 
  • These recommendations are based on the NICE guidelines on support of older people [NICE, 2018a] and on severe complex needs [NICE, 2023], and the NHSE summary of the annual health check [NHS England, 2017].
Seeking specialist advice if needed 
  • These recommendations are extrapolated from the NICE guidelines on challenging behaviour [NICE, 2015], mental health problems [NICE, 2016a], and support of older people [NICE, 2018a], and are also pragmatic, based on what CKS considers to be good clinical practice.

Scenario: Behaviour that challenges and mental health problems

From age 1 month onwards.

How should I manage behaviour that challenges and/or a mental health problem?

If a person has a confirmed learning disability and behaviour that challenges or a mental health problem following specialist assessment, encourage and support family members and/or carers to be involved in care and management decisions where appropriate, depending on the person's wishes and capacity to make decisions. Ensure the person's communication needs are taken into account and reviewed regularly.

  • If a person with a learning disability presents with behaviour that challenges, a suspected mental health crisis, and/or risk of self-harm, self-neglect, harm to others, or risk of exploitation, abuse, or neglect by others following a risk assessment:
    • Arrange referral to the local child or adult safeguarding team or a mental health professional with appropriate expertise, depending on clinical judgement. See the CKS topic on Child maltreatment - recognition and management for more information.
    • Liaise with the local multidisciplinary learning disability team for support with behaviour that challenges, which should include provision of a behavioural support plan.
      • A behavioural support plan should outline proactive strategies such as environmental changes and structured, personalized daily activities with positive behaviour support.
    • If a person has severe or complex needs, and/or the person's behaviour does not respond to a behavioural support plan, arrange specialist referral for additional assessment, support, and intervention.
      • This may include multidisciplinary input from psychologists, psychiatrists, behavioural analysts, nurses, social care staff, speech and language therapists, educational staff, occupational therapists, physiotherapists, physicians, paediatricians, and pharmacists.
      • Direct referral may be needed for any services that do not fall under the remit of the local learning disability support team.
  • If a person with a learning disability has a suspected mental health problem that cannot be managed in primary care or suspected dementia:
    • Arrange referral to a mental health professional with appropriate expertise for a specialist assessment, the urgency depending on clinical judgement.
      • This may be via the local multidisciplinary learning disability team or a direct referral, depending on local referral pathways. 
  • If a person with a learning disability is managed in primary care, discuss possible management options with the person, family members and/or carers, and provide enough time to make an informed choice, and information in a format and language suited to their needs. Options may include the following, depending on local service provision and referral pathways:
    • Assessment and modification of environmental factors that may trigger or maintain the behaviour.
      • Strategies such as developing a structured, personalized plan of daily activity and adapting the person's routine and environment may help.
    • Managing any suspected or coexisting physical or mental health problems that may contribute to the development or maintenance of behaviour that challenges, including use of medication, depending on clinical judgement.
    • Parent-training programmes for parents or carers of children aged under 12 years with emerging, or at risk of developing, behaviour that challenges.
    • Individualized psychological interventions for adults with a mental health problem or anger management problem, including use of cognitive behavioural therapy (CBT) techniques.
    • Individualized relaxation techiques to help behaviour that challenges and/or anxiety symptoms.
    • Graded exposure techniques for anxiety symptoms or phobias.
    • Distraction techniques and diversion activities.
    • Behavioural interventions for sleep problems, including structured bedtime routines. For more information see the CKS topic on Insomnia. 
  • Do not initiate antipsychotic medication in primary care. This should initially be prescribed and monitored by a specialist (an adult or child psychiatrist, or a neurodevelopmental paediatrician).
    • The responsibility for prescribing and monitoring may subsequently be transferred to primary care as part of a shared care arrangement.
    • If there is any uncertainty about the use of drug treatments and monitoring, seek specialist advice from the person's adult or child psychiatrist or neurodevelopmental paediatrician.

Basis for recommendation

The recommendations for management of a person with a learning disability with behaviour that challenges and/or a mental health problem are based on the National Institute for Health and Care Excellence (NICE) guidelines Challenging behaviour and learning disabilities: prevention and interventions for people with learning disabilities whose behaviour challenges [NICE, 2015], Mental health problems in people with learning disabilities: prevention, assessment and management [NICE, 2016a], and Disabled children and young people up to 25 with severe complex needs: integrated service delivery and organisation across health, social care and education [NICE, 2023].

Arranging referral following a risk assessment
  • These recommendations are based on the NICE guidelines on challenging behaviour [NICE, 2015], on mental health problems [NICE, 2016a], and on severe complex needs [NICE, 2023].
    • The detail about a behavioural support plan is based on the NICE guideline on challenging behaviour [NICE, 2015].
    • The recommendation if a person has severe or complex needs, or behaviour does not respond to a behavioural support plan, is based on the NICE guidelines on challenging behaviour and on severe complex needs.
    • The information that direct referral may be needed is pragmatic, based on what CKS considers to be good clinical practice.
Arranging referral for a suspected mental health problem or dementia
  • These recommendations are extrapolated from the NICE guidelines on mental health problems [NICE, 2016a] and on severe complex needs [NICE, 2023].
    • The information that direct referral may be needed is pragmatic, based on what CKS considers to be good clinical practice.
Management options in primary care
  • These recommendations are based on the NICE guidelines on challenging behaviour [NICE, 2015] and on mental health problems [NICE, 2016a].
Prescribing antipsychotic medication in primary care
  • These recommendations are based on the NICE guideline on challenging behaviour, which states that psychotropic medication may be considered to manage behaviour that challenges if psychological or other interventions do not help, treatment for any coexisting mental or physical health problems has not helped, and the risk to the person or others is very severe (for example risk of violence, aggression, or self-injury) [NICE, 2015].
  • The recommendation to seek specialist advice if needed is pragmatic, based on what CKS considers to be good clinical practice.

Supporting evidence

This CKS topic is largely based on the National Institute for Health and Care Excellence (NICE) guidelines Challenging behaviour and learning disabilities: prevention and interventions for people with learning disabilities whose behaviour challenges [NICE, 2015], Mental health problems in people with learning disabilities: prevention, assessment and management [NICE, 2016a], Care and support of people growing older with learning disabilities [NICE, 2018a], Decision-making and mental capacity [NICE, 2018b], and Disabled children and young people up to 25 with severe complex needs: integrated service delivery and organisation across health, social care and education [NICE, 2023], together with various Public Health England (PHE) and NHS England (NHSE) publications. The rationale for individual recommendations is outlined in the relevant basis for recommendation sections of the topic.

How this topic was developed

This section briefly describes the processes used in developing and updating this topic. Further details on the full process can be found in the About Us section and on the Clarity Informatics website.

Search strategy

A full literature search was not required as this CKS topic is largely based on the National Institute of Health and Care Excellence (NICE) guidelines Challenging behaviour and learning disabilities: prevention and interventions for people with learning disabilities whose behaviour challenges [NICE, 2015], Mental health problems in people with learning disabilities: prevention, assessment and management [NICE, 2016a], Care and support of people growing older with learning disabilities [NICE, 2018a], and Decision-making and mental capacity [NICE, 2018b].

Search dates

October 2018 - March 2023

Key search terms

The terms listed below are the core search terms that were used for EBSCO MEDLINE (searched 29th October 2018). This strategy was adapted for use in The Cochrane Library.

S4 S1 or S2 or S3

S3 AB learning disabilit* OR TI learning disabilit*

S2 (MH "Child Development Disorders, Pervasive+") OR (MH "Developmental Disabilities")

S1 (MH "Intellectual Disability+") 

Sources of guidelines

Sources of systematic reviews and meta-analyses

  • The Cochrane Library:
    • Systematic reviews
    • Protocols
    • Database of Abstracts of Reviews of Effects
  • Medline (with systematic review filter)
  • EMBASE (with systematic review filter)

Sources of health technology assessments and economic appraisals

Sources of randomized controlled trials

  • The Cochrane Library:
    • Central Register of Controlled Trials
  • Medline (with randomized controlled trial filter)
  • EMBASE (with randomized controlled trial filter)

Sources of evidence based reviews and evidence summaries

Sources of national policy

Patient experiences

Sources of medicines information

The following sources are used by CKS pharmacists and are not necessarily searched by CKS information specialists for all topics. Some of these resources are not freely available and require subscriptions to access content.

Stakeholder engagement

Our policy

The external review process is an essential part of CKS topic development. Consultation with a wide range of stakeholders provides quality assurance of the topic in terms of:

  • Clinical accuracy.
  • Consistency with other providers of clinical knowledge for primary care.
  • Accuracy of implementation of national guidance (in particular NICE guidelines).
  • Usability.

Principles of the consultation process

  • The process is inclusive and any individual may participate.
  • To participate, an individual must declare whether they have any competing interests or not. If they do not declare whether or not they have competing interests, their comments will not be considered.
  • Comments received after the deadline will be considered, but they may not be acted upon before the clinical topic is issued onto the website.
  • Comments are accepted in any format that is convenient to the reviewer, although an electronic format is encouraged.
  • External reviewers are not paid for commenting on the draft topics.
  • Discussion with an individual or an organization about the CKS response to their comments is only undertaken in exceptional circumstances (at the discretion of the Clinical Editor or Editorial Steering Group).
  • All reviewers are thanked and offered a letter acknowledging their contribution for the purposes of appraisal/revalidation.
  • All reviewers are invited to be acknowledged on the website. All reviewers are given the opportunity to feedback about the external review process, enabling improvements to be made where appropriate.

Stakeholders

  • Key stakeholders identified by the CKS team are invited to comment on draft CKS topics. Individuals and organizations can also register an interest to feedback on a specific topic, or topics in a particular clinical area, through the Getting involved section of the Clarity Informatics website.
  • Stakeholders identified from the following groups are invited to review draft topics:
    • Experts in the topic area.
    • Professional organizations and societies (for example, Royal Colleges).
    • Patient organizations, Clarity has established close links with groups such as Age UK and the Alzheimer’s Society specifically for their input into new topic development, review of current topic content and advice on relevant areas of expert knowledge.
    • Guideline development groups where the topic is an implementation of a guideline.
    • The British National Formulary team.
    • The editorial team that develop MeReC Publications.
  • Reviewers are provided with clear instructions about what to review, what comments are particularly helpful, how to submit comments, and declaring interests.

Patient engagement

Clarity Informatics has enlisted the support and involvement of patients and lay persons at all stages in the process of creating the content which include:

  • Topic selection
  • Scoping of topic
  • Selection of clinical scenarios
  • First draft internal review
  • Second draft internal review
  • External review
  • Final draft and pre-publication

Our lay and patient involvement includes membership on the editorial steering group, contacting expert patient groups, organizations and individuals.

Evidence exclusion criteria

Our policy

Scoping a literature search, and reviewing the evidence for CKS is a methodical and systematic process that is carried out by the lead clinical author for each topic. Relevant evidence is gathered in order that the clinical author can make fully informed decisions and recommendations. It is important to note that some evidence may be excluded for a variety of reasons. These reasons may be applied across all CKS topics or may be specific to a given topic.

Studies identified during literature searches are reviewed to identify the most appropriate information to author a CKS topic, ensuring any recommendations are based on the best evidence. We use the principles of the GRADE and PICOT approaches to assess the quality of published research. We use the principles of AGREE II to assess the quality of published guidelines.

Standard exclusions for scoping literature:

  • Animal studies
  • Original research is not written in English

Possible exclusions for reviewed literature:

  • Sample size too small or study underpowered
  • Bias evident or promotional literature
  • Population not relevant
  • Intervention/treatment not relevant
  • Outcomes not relevant
  • Outcomes have no clear evidence of clinical effectiveness
  • Setting not relevant
  • Not relevant to UK
  • Incorrect study type
  • Review article
  • Duplicate reference

Organizational, behavioural and financial barriers

Our policy

The CKS literature searches take into consideration the following concepts, which are discussed at the initial scoping of the topic.

  • Feasibility
    • Studies are selected depending on whether the intervention under investigation is available in the NHS and can be practically and safely undertaken in primary care.
  • Organizational and Financial Impact Analysis
  • Studies are selected and evaluated on whether the intervention under investigations may have an impact on local clinical service provision or national impact on cost for the NHS. The principles of clinical budget impact analysis are adhered to, evaluated and recorded by the author. The following factors are considered when making this assessment and analysis.
    • Eligible population
    • Current interventions
    • Likely uptake of new intervention or recommendation
    • Cost of the current or new intervention mix
    • Impact on other costs
    • Condition-related costs
    • In-direct costs and service impacts
    • Time dependencies
  • Cost-effectiveness or cost-benefit analysis studies are identified where available. 

We also evaluate and include evidence from NICE accredited sources which provide economic evaluations of recommendations, such as NICE guidelines. When a recommended action may not be possible because of resource constraints, this is explicitly indicated to healthcare professionals by the wording of the CKS recommendation.

Declarations of interest

Our policy

Clarity Informatics requests that all those involved in the writing and reviewing of topics, and those involved in the external review process to declare any competing interests. Signed copies are securely held by Clarity Informatics and are available on request with the permission of the individual. A copy of the declaration of interest form which participants are asked to complete annually is also available on request. A brief outline of the declarations of interest policy is described here and full details of the policy is available on the Clarity Informatics website. Declarations of interests of the authors are not routinely published, however competing interests of all those involved in the topic update or development are listed below. Competing interests include:

  • Personal financial interests
  • Personal family interest
  • Personal non-financial interest
  • Non-personal financial gain or benefit

Although particular attention is given to interests that could result in financial gains or losses for the individual, competing interests may also arise from academic competition or for political, personal, religious, and reputational reasons. An individual is not obliged to seek out knowledge of work done for, or on behalf of, the healthcare industry within the departments for which they are responsible if they would not normally expect to be informed.

Who should declare competing interests?

Any individual (or organization) involved in developing, reviewing, or commenting on clinical content, particularly the recommendations should declare competing interests. This includes the authoring team members, expert advisers, external reviewers of draft topics, individuals providing feedback on published topics, and Editorial Steering Group members. Declarations of interest are completed annually for authoring team and editorial steering group members, and are completed at the start of the topic update and development process for external stakeholders.

Competing interests declared for this topic:

None.

References

  • BPS (2015) Guidance on the Assessment and Diagnosis of Intellectual Disabilities in Adulthood. British Psychological Society. https://www.rcpsych.ac.uk [Free Full-text]
  • CIPOLD (2013) Confidential Inquiry into premature deaths of people with learning disabilities (CIPOLD). University of Bristol. http://www.bris.ac.uk [Free Full-text]
  • DHSC (2001) Valuing people - a new strategy for learning disability for the 21st century. Department of Health and Social Care. https://www.gov.uk [Free Full-text]
  • KCL (2021) LeDeR Annual report. Learning from lives and deaths - people with a learning disability and autistic people. King's College London. https://www.kcl.ac.uk [Free Full-text]
  • NHS Digital (2022) Health and care of people with learning disabilities, experimental statistics 2021 to 2022. NHS Digital. https://digital.nhs.uk [Free Full-text]
  • NHS England (2017) A summary and overview of the learning disability annual health check electronic clinical template (2017). NHS England. https://www.england.nhs.uk [Free Full-text]
  • NHS England (2019) Improving identification of people with a learning disability: guidance for general practice. NHS England. http://www.england.nhs.uk [Free Full-text]
  • NICE (2015) Challenging behaviour and learning disabilities: prevention and interventions for people with learning disabilities whose behaviour challenges. National Institute of Health and Care Excellence. http://www.nice.org.uk [Free Full-text]
  • NICE (2016a) Mental health problems in people with learning disabilities: prevention, assessment and management. National Institute for Health and Care Excellence. http://www.nice.org.uk [Free Full-text]
  • NICE (2016b) Mental health problems in people with learning disabilities: prevention, assessment and management. National Institute of Health and Care Excellence. https://www.nice.org.uk [Free Full-text]
  • NICE (2016c) Transition from children's to adults' services for young people using health or social care services. National Institute for Health and Care Excellence. http://www.nice.org.uk [Free Full-text]
  • NICE (2017) Learning disabilities: identifying and managing mental health problems. National Institute of Health and Care Excellence. http://www.nice.org.uk [Free Full-text]
  • NICE (2018a) Care and support of people growing older with learning disabilities. National Institute for Health and Care Excellence. http://www.nice.org.uk [Free Full-text]
  • NICE (2018b) Decision-making and mental capacity. National Institute of Health and Care Excellence. http://www.nice.org.uk [Free Full-text]
  • NICE (2019) Learning disability: behaviour that challenges. National Institute for Health and Care Excellence. https://www.nice.org.uk [Free Full-text]
  • NICE (2020) Decision making and mental capacity Quality Standard. National Institute of Health and Care Excellence. http://www.nice.org.uk [Free Full-text]
  • NICE (2023) Disabled children and young people up to 25 with severe complex needs: integrated service delivery and organisation across health, social care and education. National Institute for Health and Care Excellence. http://www.nice.org.uk [Free Full-text]
  • PHE (2016) Annual health checks and people with learning disabilities. Public Health England. https://www.gov.uk [Free Full-text]
  • PHE (2020) People with learning disabilities in England. Public Health England. https://www.gov.uk [Free Full-text]
  • PHE (2023) Learning disability - applying all our health. Public Health England. http://www.gov.uk [Free Full-text]
  • RCPsych (2016) Psychotropic drug prescribing for people with intellectual disability, mental health problems and/or behaviours that challenge: practice guidelines. Royal College of Psychiatrists. http://www.rcpsych.ac.uk [Free Full-text]
  • Rey-Casserly, C., McGuinn, L. and Lavin, A. (2019) School-aged children who are not progressing academically: considerations for pediatricians. Pediatrics 144(4). [Abstract]
  • WHO (2022) International Classification of Diseases, 11th Revision (ICD-11). World Health Organization. http://who.int [Free Full-text]
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